For those who are prescribed xyrem and haven't started..
I started early May and have been consistently waking up - on my own.. before my alarm.. feeling rested and energized!
My daytime meds are decreasing (I've dropped one of the two completely).
I haven't been writing about my experiences, partly because they were too personal and I was afraid of the information being used as a reason to deem me incompetent, and partly because I was done acknowledging how abnormal I had become. Little things kept separating me from being able to keep up with others and others could not understand why I had to keep avoiding so many experiences as simple as laughing or having catch-up conversations.
I can laugh, get upset, be startled and no legs giving out on me or hiding from others while my arms and neck are extremely weak. I'm starting to not hold back experiencing my emotions. I still have the habit of bracing myself expecting the fall (which I never realized I did before!), but bracing myself hasn't been necessary - I have been feeling all of these things and standing tall!
There are side effects that I have to manage, but they are so far less severe than what I had to juggle on my own. My dog - who's been my helper and warned me when episodes were coming - has been sick for almost a year mostly because I haven't been able to care for her. Now I'm able to walk her and play with her so she can fight the sickness that's been bugging her.
I was so scared to start on this med. I didn't realize how badly dreams took over and were robbing me of my quality of life. Each person has a different experience. Note your symptoms and changes and work closely with your doctor. My experience has been as everyone says "life changing" - even with a four-month period of struggling with adjusting and side effects.
I am waking up from what feels like a seven year coma. It is so weird to be an adult and feel like I'm just starting out (but with the mess of seven years of adult life that has been forgotten while I slept through it!). Choosing to go on this medication has been well worth the journey. I have the opportunity to live again.